People will ask you is that chickenpox or poison ivy, or shingles, or mumps or psoriasis?
#3 For the last time everyone I’m not contagious
Explaining that you are not a walking contagion will be exhausting. It is definitely not contagious, you are not giving it or getting it from someone.
#4 Please keep your unhelpful statements to yourself
If you could get a nickel for everytime someone says “just stop scratching” you would be a millionaire!
#5 What does a hot shower feel like?
Steaming hot showers? Nope! Saunas? Nope! Soaking in a hot bath? Double Nope! Definitely not experiencing these things, more like lukewarm or cool showers followed by a slathering of moisturizers.
#6 Back away from the wool
Cozying up in a wool sweater…definitely a hard No! You spend a lot of time finding and reading the tags of clothing and hoping that someday they will make 100% cotton sweaters that are fashionable!
#7 You can find me in the lotion aisle
The frustration of having to go to a new store to buy groceries or laundry detergent and you can’t find your normal go-to products since you don’t know the layout of the store. Add another 2 hours to the shopping trip while you have to read every label of shampoo and lotion bottle to make sure it doesn’t include any ingredients that might irritate your skin.
#8 Everyone has a magic cure to offer
Yes- I have tried all of the aforementioned things you just rattled off to me and no I do not want to try or buy (insert any product that someone has tried to sell you that will help your atopic eczema.)
Asking what ingredients are in something, is probably part of your regular vocabulary and going out to eat or attending parties or gatherings at others people’s houses is never dull a moment.
While there are definitely frustrations living with atopic dermatitis remember it doesn’t define who you are and there is always a community of folks who understand what it is like to cope with this condition!
Atopic dermatitis is more than just skin symptoms. Share what it is like for you living with atopic dermatitis and the complications that often accompany it by taking our survey.