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Doctor Frustration

Vent about a time that you felt invalidated, unheard, disappointed in, or medically gaslit by the doctor who treats your eczema!

  1. But ChatGBT is superb.

  2. It took me 30 years!!! to finally have a dermatologist say she knew what I had (prurigo nodularis) and prescribed methotrexate to heal me. I am a new woman after 10 months on this rx! Very inexpensive and no more itching! I have been given a miracle.

    1. Thank you for your comments. I am trying to connect with medical researchers in the areas of itch and neurosensitivity. My PN started after I quit alcohol 30+ years ago; I have heard of others whose nervous systems have been damaged by alcohol and want to pursue this if I can. I have names of a few researchers but no way to get through to them through their front offices or mail screening. I live in Oregon and they are in other states so an appointment would only be possible after an initial contact and I don't know how to find that! Can you help or give ideas? Thanks, Jan

    2. Hello dear Jan, (), I find the depth of your research very awesome! I wish I had a magic wand to locate an answer for you. Doing my own cruise through the medical journals, I found two that may be of interest, even more their references and advisory boards may be another route to contact: https://nationaleczema.org/eczema/types-of-eczema/neurodermatitis/. and: https://www.medicaljournals.se/acta/content_files/files/pdf/72/176/1769394.pdf. and: https://www.frontiersin.org/articles/10.3389/fmed.2021.641746/full. Please let us know your thoughts as we are sincerely concerned about you, your health and wellbeing. Sending healing hugs to you, Liz - AtopicDermatitis.net - Site Moderator

  3. It took me 37 years to finally get the rx cream (which doesn't work)

    1. Dear , it is truly maddening to read that it took so long for you to receive a prescription cream. Even more frustrating to find it did not work for you. I can understand your disappointment. May I ask what if your doctor recommended an alternative; perhaps there are other medications that may be more effective? Perhaps, there is an alternative dermatologist to obtain a second opinion. Here is another article that may be of interest - we are not alone here with our challenges: https://atopicdermatitis.net/living/find-good-dermatologist. Let us know your thoughts... Please stay in touch as we sincerely care about you and your health... Sending healing hugs, Liz - AtopicDermatitis.net - Site Moderator

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