Hi AD community 😀 it’s my first post here, I’m happy I found you in a moment I can barely move or open my eyes bc of AD.
My name is Thais, I live in Berlin, Germany, and I’m originally from Brazil. I’ve struggled with atopic dermatitis for more than 20 years (Im currently 26) and I’m clearly addicted to topical steroids. Fortunately, I didn’t take much oral corticoides and used few tubes of high potency topical corticoides. But for my entire life I used Desonida and most recently Topison almost everyday and almost on my whole body including face.
Now I’ve attempted to stop steroids 4 times. First (and most traumazing one) was recommended by a Doctor in Brazil and no gradual plans were set for me. The results, the damaged area spread from arms, neck and eyelids to my WHOLE body in 7 months. I’m still suffering its effects as I couldn’t stand the treatment and gave up after 7 months.
Other 3 times with STW it lasted only few months (max 3) until I come again to a point I couldn’t go out of my bed to work or university. So up until now I decided to live a “better” life without the flares.
However it really annoys me to be an addict. Plus, I started to notice how my skin wasn’t going back to “normal” anymore after steroids and weird things started to appear, making me really uncomfortable about myself.
This week in Berlin a dermatologist gave me green lights to start Dupixent. But (as any other dermatologist in my life) they lack a set of soft skills to introduce me to the treatment and I’m feeling super insecure about it.
I would like to ask the community:
Does it work if I use Dupixent for 1-2 years as a complementary treatment for my steroids withdrawal? My idea is to use it for the time my body needs to get rid of the topical steroids and stop Dupixent gradually until I don’t need it anymore, even if some flares or soft dermatitis come back afterwards.
Let me know your thoughts and experiences 😀 I’m sending some letters with the same questions to some other professionals. Once I get their answer, I’ll update it here.
Thanks and stay safe!!