My Journey Sharing My Skin Story
Last updated: March 2021
There comes a time when you are all out of words. I can see myself getting to that point in all areas of my life, so what I am writing is not exclusively for eczema. Being constantly reflective and in tune with your body and spirit is exhausting. It can be a full-time job, but even scheduling the right things so that it isn’t a last-minute burden can be tasking. Let’s face it taking care of yourself is real work!
Sharing my story as an outlet
Spending years being reserved and closed-in about my health problems, I had a lifetime of stories and emotions to share with the world of eczema and all skin disease sufferers/warriors. When I first started speaking about my experience publicly online and later openly with anyone in person I came across with eczema problems, it was when I was dealing with my worst flare ever which turned out to be topical steroid withdrawal. During this time of confusion and pain, there was no other option for me than to release those current wounds and all of the wounds of my past.
What's next in my eczema journey?
Now that severe eczema has consistently been a thing of the past for at least 6 to 9 months now, I wonder what is next for this eczema journey. I am aware that my way of life is important to combat eczema flares. I must make wise decisions for my health no matter what, but the extreme discomfort that chronic physical health use to cause me while I was constantly being medicated for it is a thing of the past.
The opportunities sharing my story has given me
Writing for AtopicDermatitis.net has helped me to write countless eczema love letters to my wounds to assist in any potential PTSD (post-traumatic stress disorder) I may or may not have developed from the extremes of TSW. I’ve shared my story countless times on social outlets, and I am actively involved as a patient research advisor whenever available to help future patients have better experiences.
I can only hope to evolve
I am not writing this to say that I have done it all or that I will stop contributing to the community in any way. But as time goes on and I continue to new chapters in my life, the profound heavy-hearted commentary is less of a personal need. I’m aware that these notes can be comforting to other eczema patients, and the content of this website is everything I wish I could have read as a child. Still, I also know that I want to give quality messages that continue to evolve.
There comes a time when regrouping and recentering is important to come back fully energized, capable, and organized to give your best self. I think that recognition is important in all areas of our life so that we can do less forcing and more flowing with the process and journey of life. What can you take a break or do less of so that you can come back even better for the long haul? Let me know in the comments.
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