Doctor Frustration
Vent about a time that you felt invalidated, unheard, disappointed in, or medically gaslit by the doctor who treats your eczema!
My one dermatologist told me " I don't see nothing, I don't treat nothing. I left and went to cardiac emergency the itching was so bad. Then I went to Dr. Sophie from Queens NY, Puerto Rican and she said I see exactly what's going on!
But ChatGBT is superb.
It took me 30 years!!! to finally have a dermatologist say she knew what I had (prurigo nodularis) and prescribed methotrexate to heal me. I am a new woman after 10 months on this rx! Very inexpensive and no more itching! I have been given a miracle.
Thank you for your comments. I am trying to connect with medical researchers in the areas of itch and neurosensitivity. My PN started after I quit alcohol 30+ years ago; I have heard of others whose nervous systems have been damaged by alcohol and want to pursue this if I can. I have names of a few researchers but no way to get through to them through their front offices or mail screening. I live in Oregon and they are in other states so an appointment would only be possible after an initial contact and I don't know how to find that! Can you help or give ideas? Thanks, Jan Hello dear Jan, (
), I find the depth of your research very awesome! I wish I had a magic wand to locate an answer for you. Doing my own cruise through the medical journals, I found two that may be of interest, even more their references and advisory boards may be another route to contact: https://nationaleczema.org/eczema/types-of-eczema/neurodermatitis/. and: https://www.medicaljournals.se/acta/content_files/files/pdf/72/176/1769394.pdf. and: https://www.frontiersin.org/articles/10.3389/fmed.2021.641746/full. Please let us know your thoughts as we are sincerely concerned about you, your health and wellbeing. Sending healing hugs to you, Liz - AtopicDermatitis.net - Site Moderator
It took me 37 years to finally get the rx cream (which doesn't work)
Dear
, it is truly maddening to read that it took so long for you to receive a prescription cream. Even more frustrating to find it did not work for you. I can understand your disappointment. May I ask what if your doctor recommended an alternative; perhaps there are other medications that may be more effective? Perhaps, there is an alternative dermatologist to obtain a second opinion. Here is another article that may be of interest - we are not alone here with our challenges: https://atopicdermatitis.net/living/find-good-dermatologist. Let us know your thoughts... Please stay in touch as we sincerely care about you and your health... Sending healing hugs, Liz - AtopicDermatitis.net - Site Moderator
