Eczema Frustrations!
Vent about a time that you felt frustrated by your eczema treatments or skincare products not working or unsolicited advice you received about how to care for your skin (“Have you tried…?”)!
Hi I've for RX IM NOT SURE WHAT IT IS
My start with Dupixent for eczema/psoriasis was promising at first. Best skin I've had since I was 16! So exciting. Then December 1 dosing must have given me flu-like symptoms. Almost felt COVID like to me. Tested negative several times though. December 15th I was more achy, felt like a fever, and I was sleeping all the time. The January 1 dose gave me rashes and a touch of anaphylaxis (I've had med reactions with full-blown anaphylaxis before, so believe me when I say it was heading that way). Benedryl calmed that back down fortunately. So that's it for Dupixent for me. I talked to the dermatologist, reported it to the pharmacists. Clearer skin was amazing, but I'm not pushing through any more of it to see if that symptom goes away. It took until about December 13th to feel human again. Can't live life like that. Bummer. I'm taking at least a month off until it all gets out of my system, then I'll go back to the doc and see if there's something else I can try.
, I hear how disappointing it is to have a reaction to a treatment that seemed to be working. It's better to be safe and stop taking it though with a reaction like that. To prep for that doctor appointment here is an article we have that talks about some of the other treatment options that you and your doctor may consider: https://atopicdermatitis.net/treatment-options Best, Sam S. (team member).
I have been dealing with what has just been diagnosed as AD after 15 years.Trying dupixent has brought some relief but not enough for the cost and now going to try nemluvio depending on cost.My big gripe is the cost of these medications it really makes you wonder about the kind of people that would charge these prices it's ridiculous.l have COPD and l was thinking the dupixent might help had other stuff going on so l can't tell yet.
, the expense of medications is really so frustrating! Sometimes, if you reach out to the manufacturer, they offer copay assistance or coupons. Your doctor should be able to point you in the right direction! Best, Sam S. (team member). my pulmonologist had my on Trelogy for asthma, and felt the addition of Dupixent would give me some extra asthma relief as a bonus. I'm not sure it did, but it's also wildfire season so air quality is bad. As you can see above, I just stopped the Dupixent after about 7 doses due to issues with it.
All of you that have been suffering from AD like I did, the only thing that really really works are these new Biologic meds like Dupixent. I've been on it for almost a year and I didn't even know I have been on évery steroid cream on the market. I've been to four Dermatologists in one year, using only ointments and creams specially made for AD and stayed away from any perfumes and other stuff with artificial aromas etc. Then my insurance approved the use of Dupixent and I was excema free for almost a year until my funds ran out and I'm off the gravy train for six months and this horrible excruciating torture is back in full swing, even my private parts are affected. To top it all I'm 70 years old and thought that I would at Least be spared at this age. So I'm really sorry for all of going through it and lots of love and strength to all of you
Thanks for your empathy. For me it is a heartwarming feeling. It's not every day that I get sympathy 😔 
so glad to hear that my words brought you some comfort. It’s truly heartwarming to know you feel heard and understood here. This community is a wonderful space where we can all share our experiences and support each other without judgment. We're here for you, and you deserve all the empathy and kindness. Remember, adding a little self-care to your routine can do wonders for your well-being, you are worthy of it! Stay strong, and remember you’re not alone in this journey. 🤍Chava B. Wald (Moderator & Contributor)
