See No Evil, Hear No Evil, Speak No Evil
Everyone speaks of their healing journey. And all I can tell you is that it is a long and arduous one, especially for those of us experiencing TSW. Because not only are we healing from the very obvious physical tragedies of this iatrogenic illness, but then we have the long road of healing from our mental and emotional wounds. Which of course in comparison to our physical wounds are just so much more difficult to see, navigate, and understand. I never claim to have all the answers, because honestly I just don’t. I’m going through this just like you. But as I sit here listening to Debussy’s Clair de Lune, I have a few thoughts on how to heal those invisible wounds. Take from them what you will. I truly hope these ruminations help you in some way.
Healing our eyes
During TSW, we see so much tragedy take place on our own illness-ridden bodies. And if we are active in the TSW community via social media, we see the physical tragedy of others as well. Of course, we cannot ignore our reality, but instead, let us accept and enhance our experience. Once the inflammation goes down, and the cuts on the corners of your eyes heal, remind your eyes of the beauty in this world. If you have them, look at pictures of yourself when your skin was in a better state. Remind yourself that this will once again be your reality. Hop onto Reels on Instagram and give your eyes a peek at the breath-taking locations you will visit once you are better.
Healing our ears
Once the crusts have dried and the flakes peeled off from behind both your ears, ask yourself: Do you remember who you were before TSW took over your life? What music did you enjoy before your skin became your main priority? Go back to the music that brings you true comfort. For example, throughout grade school and high school, I was in orchestra. I then trained in classical voice. Classical music fills my soul and brings me comfort no other genre of music can. Find the genre of music that does that for you. Surround yourself with friends and loved ones who speak highly of you and believe in what you are capable of. Allow these healing sounds to uplift your mind.
Healing our mouths
Speak of yourself as you would a loved one. Once the cuts on the corners of your mouth heal, and you are able to laugh comfortably again, smile in triumph at how far you have come. Talk about yourself and your situation with words of love and hope, rather than shame and self-loathing. Remind your mouth of what it’s like to have joyful conversations with your friends about life beyond your skin condition, and dare to even make plans for the future. The positive words of affirmation that you so crave is a conversation that begins with you. Start building the loving and supportive environment that your body so needs.
Life with atopic dermatitis can be frustrating. Will you help others understand by taking our survey (US only)?
Join the conversation