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Where Do I Start? How to Share Your Eczema Story

“I want to share my story but don’t know how to start.”

If this sounds like you, you’re not alone. I’ve heard people say this quite often in the eczema community. Getting started can be the hardest part. Especially if this is the first time you’ve ever shared your eczema story.

Sharing can be scary at first

After spending time and energy hiding or downplaying eczema, it can be scary to think about sharing all of a sudden. You might wonder how others will respond, or if they will respond at all. Or worried that nobody wants to hear what you have to say.

I can assure you that isn’t true. I read every story that gets submitted to AtopicDermatitis.net. Each and every story has a tremendous impact, and helps raise awareness for the challenges of living with eczema. You never know who will read your story, and how they might be able to relate.

After finally taking the leap, many people will say that they can’t believe they waited so long to share their story. Some will even say that sharing their eczema story is one of the best things they’ve ever done.

Ready to share?

I’ve gathered the components that make up many eczema stories and outlined some pointers to walk you through sharing your story. While there isn’t a single format or structure for a story, I hope these help you with sharing yours, whenever you are ready of course. Let’s get started!

Introduce yourself

Start with a short introduction about yourself. Remember your audience does not know who you are, so include relevant aspects about your background or interests. How long have you been living with eczema symptoms? If you’ve been diagnosed, share about that experience, and how you were feeling about it.

Your symptoms and treatment

Many people will open up about their symptoms, and what they’ve been doing or trying to manage them. They talk about their visits to the doctors, and what they are learning about their condition. Have you undergone any tests? What treatments, if any, are you using and how has that been going?

How you are doing today

The end portion of the story usually includes a reflection or an update on how they are doing. Have you made any progress since the beginning of your journey, or have things gotten worse? What mental hurdles are you facing? Have you found support online or in-person? What are your hopes or plans for managing your eczema?

Don’t forget to make it personal

No two stories are the same. Be sure to incorporate some personal touches to make your story unique to you. Whether it’s your raw emotions, sense of humor, or writing your story like a poem or song, your story can be as unique as you are.

Share your eczema story on AtopicDermatitis.net

I look forward to reading your story!
-Sarah (AtopicDermatitis.net Team Member)

Comments

  • Nisswa69
    3 months ago

    Hi my name is Jane and I have suffered from eczema as long as I can remember. I am 68 years old, living in Tennessee, and happily retired. My skin had gotten worse as the years have gone by. I had a real bad winter this year!!! I have gone to so many doctors through the years because I have moved 29 times. The doctor I saw for 15 years retired and I thought I knew enough to go it on my own. LOL!!! My simple eczema turned into AD a few years back and it got so bad that I had to find a new doc. The doctor wanted me to go back on allergy shots to help get my skin under control plus the medicine and lotions. The allergy shots were going good until the last two times. I had a reaction that was to small to record and my face and the top of my feet broke out in a rash that hurt a lot. The next time I got a shot my face started to brake out even before I left the office. I had a big enough reaction this time to take notice. They put me on pills and want me to not get another shot until my face clears up. Then I will be put on a lower dosage for the allergy shots. The allergy shots that were going to help me skin is giving me a rash! A flare up of AD.
    This could be so discouraging for me but I am not going down that road! I do have good doctors on my side who understand the many ups and downs that AD creats. I have a great husband who is very patient with me. The doctors have more options now, there are websites to help out and I will not let my AD control me!! Life goes by fast and I am going to enjoy the rollercoaster of life!!!

  • Sarah Wallin moderator author
    3 months ago

    Hi Jane! Thanks SO much for sharing your eczema story with us. I hope these story sharing tips were helpful. You have a great story that I know others here can relate to. We published your story to the special section of our site that is dedicated to community stories. You can view your story here: https://atopicdermatitis.net/?p=10732. Thanks again for sharing! Take care, Sarah (AtopicDermatitis.net Team Member)

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