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Matches with different degrees of being burnt

Patient Burnout: The Real Deal or Nah?

You know, the other day I cried. I didn’t cry out of anger or sadness either. I just cried because I could. I was frustrated and sure, we’re not in the (doctor’s) office everyday from nine to five like the healthcare providers are, but the time we are feels like a lifetime and a half! Seeing doctor after doctor, specialist after specialists, decided whom you trust and who’s simply not a good fit. Processing things like test results, bad news, new medications, the list goes on.

Patient Burnout is real.

Is it noticeable?

So how do doctor’s know when their patient is burnt out? How do healthcare providers truly know when the patient just needs a break and some time to be a person? Well, frankly, they don’t. Healthcare providers can’t read our minds. They’re good, but unfortunately they’re not that good.

Me being the person I am, I try not to tell all of my issues, at least not in the doctor’s office. Their jobs are hectic enough and I don’t want to burden them with my longwinded fear of being on medication for the rest of my life. I don’t want to interrupt their busy days with my feelings of uncertainty and downright fear of the next test, procedure or drug. I don’t want anyone to look at me as ungrateful because I skip doses of my medication to feel human again.

Be vocal

As scary as it can be to open up, it’s necessary. Your doctor only knows what you and your labs will show and tell them. There’s no lab that tells a doctor when the patient has had enough, but you are a person and you have your own voice. Use it.

Patient burn out is no joke.

Tired of being tired

At times I wonder why I have such a hard time taking meds, why I’m not motivated to go to appointments that could possibly help me and improve my overall wellbeing. Why I just want to run away from offices and hospitals as fast as I can without looking back. Looking back at my life I see now, I’m not a rebel or ungrateful. I’m simply tired.

I’m tired of living with multiple conditions and seeing new doctors. I’m tired of settling for “okay” because although it’s not my best, my condition doesn’t have a cure yet so essentially I just have to “live with it.” I’m tired of people judging me because I’m young and ill and more than anything I am so tired of being tired.

The break we want, the help we need

Not all of us are in a position where we can avoid healthcare all together. – Many of us aren’t. Even though we’ve made it through one appointment, there’s still the follow up looming over our heads waiting around the corner. So no, maybe our doctor’s can’t give us the break we want and so desperately need, but they can help.

If you’re feeling overwhelmed with your healthcare, talk to your doctor. Ask them for resources, even healthy coping mechanisms to help get your through this hard time. We all get fed up at some time or another. We are patients, but we are still human.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The AtopicDermatitis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Storm
    11 months ago

    I’m definitely experiencing this; I think I have been for several years now.

    Dealing with the “lifestyles changes” I have to make because bespoke gloves are not available has slowly reduced me to an abject lifestyle: I cant wash myself, keep the house clean and have to rely on supplements instead of food as I cant pepare meals without sending my skin into flare. Supplements dont seem to be quite enough to stop recurring anaemia- I guess I havent yet worked out just how much I need… but more and more lately Im too tired to take the pills… Im not even sure what I mean by that really… I look at them and Im overcome by a wave of despair- that this is it.

    I’m well aware there is not sufficent quality in this lifestyle to make it worth living; I keep trying to find a way to adapt or make gloves so I can get my life back… but Ive already been given up on by the local Occupational Therapy Team- who believe they reached “the end of the road”. Its hard not to agree sometimes, especially after they abandoned me.

    I find it shocking that the NHS can get away with simply having no coherent plan to deal with unusual cases- no team of boffins funded by tax payers. Do all of those who need bespoke protective clothing simply have to manage without. I would love to know how many of us have been brushed under the carpet.

    I cant even sustain the anger these days, it sparks briefly now and then, mostly Im reduced to apathy. Occassionally self pity when I think what my life might have been with adequate support- the lost years of barely surviving rather than really living.

  • MelodyBarker
    1 year ago

    I agree with u since birth my daughter in battle ad rhinitis astma environmental allergies one day can be fine next day i can be in er with her overwhelming days i just cry..

  • Sarah Wallin moderator
    1 year ago

    Melody, I’m sorry that your daughter has been battling with all of these symptoms 🙁 The unpredictable nature of these conditions can be so overwhelming. Have you been able to find any helpful resources or coping mechanisms? -Sarah (AtopicDermatitis.net Team Member)

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